NHS Digital Data Opt Out

Jun 27, 2021

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The data held in the GP medical records of patients is used every day by NHS Digital to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has now developed a new way to collect this data, called the General Practice Data for Planning and Research data collection.

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning by NHS Digital.

If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out or a National Data Opt-out, or both. These opt-outs are different and they are explained in more detail below. Your individual care will not be affected if you opt-out using either option.

Type 1 Opt-Out
If you do not want your GP to share your identifiable patient data for purposes except for your own care, you can opt-out. This prevents your data being shared with NHS Digital. If you have previously registered a Type 1 Opt-Out with your GP practice, your data will not be shared with NHS Digital.

National Data Opt-Out
You can also register a National Data Opt-out, which will prevent NHS Digital from sharing your identifiable patient data for planning and research purposes. Your individual care will not be affected if you opt-out using either option. You can find out more about and register a National Data Opt-out or change your choice on nhs.uk/your-nhs-data-matters or by calling 0300 3035678.

Opt-outs (either type) that have been registered in the past will all be fully respected.

Please see our June Patient Newsletter for more information.